Partner Families
Will to Cure ALD began with William, but it has been shaped by families whose stories have become part of our own. The Phillips and Kampfschulte families have given us friendship, perspective, and a shared determination to change what an ALD diagnosis means for the families who come next.
Phillips Family
A chance connection brought the Phillips family into our lives, but it quickly became clear how much we shared: our faith, our values, our hopes for our sons, and our determination to change the future of ALD.
Morgan and Stephen have become close friends and have generously given their time, talents, and hearts to help make Will to Cure ALD successful. Stephen serves on our board, and both he and Morgan have become an essential part of this mission. They have stood beside us not only in this work, but also in the uncertainty that comes with raising a son with ALD. Their son Jude, who was diagnosed through newborn screening like William, is one of the many reasons we keep pushing forward.
Kampfschulte Family
The Kampfschulte family’s connection to ours is difficult to describe as coincidence. When their son Julian passed away from cerebral ALD, they lived across the street from the house where William was later born.
After losing Julian, Jenna and Kurt turned unimaginable grief into action. They advocated for newborn screening in Texas, helping give families like ours something they were never given: an early diagnosis, time to prepare, and a chance to fight. The screening that identified William at birth exists in part because Jenna and Kurt refused to let Julian’s story end with his loss. His legacy is forever woven into the mission of Will to Cure ALD.
